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دسته بندی:
حقوق خصوصی - Private law
سال انتشار:
2014
عنوان انگلیسی مقاله:
Health data privacy and confidentiality rights: Crisis or redemption?
ترجمه فارسی عنوان مقاله:
حقوق و حریم خصوصی و محرمانه بودن داده های سلامت: بحران یا رستگاری؟
منبع:
sciencedirect - elsevier - Revista Portuguesa de Saúde Pública Volume 32, Issue 2, July–December 2014, Pages 123–133
نویسنده:
Paula Lobato de Faria ∗, João Valente Cordeiro
چکیده انگلیسی:
Although widely analyzed by authors and theoretically valued by the public, the right to
health data confidentiality seems to be more of an academic figure than a real protected
right. This happens due to intrinsic problems with the practical enforcement of some
patient’s rights, but is getting more notorious in contemporary society.
This article describes the rights to health data privacy and confidentiality in their classical
contours, focusing on areas of consensus and controversy and analyzing the recent transformations in society that are causing a crisis in these same rights. We agree that there are
reasons to believe that there are no novel legal instruments in Health Law to redeem these
rights, except for European Data Protection Law. Here, we briefly analyze the new European
data protection draft regulation, which intends to bring reinforced tools on this domain.
We conclude that the juridical aura that still embraces the right to medical and genetic
data confidentiality in Health Law and Bioethics seems to no longer have a practical sense.
However, despite this perception, the essential dimension of individual freedom relating to
personal information and to the notion that the less is known about us the freer we all are is
still very relevant and so Health Law needs to dedicate more attention to the transformations
of privacy and confidentiality in the medical and genetic fields in order to maintain them
protected and respected.
Keywords: Right to privacy | Right to confidentiality | Health data | Health data protection and security | Patient’s rights | European data protection law
قیمت: رایگان
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