عنوان انگلیسی مقاله:
Knowledge, opinion and attitude about the Italian law on advance directives: a population-based survey
ترجمه فارسی عنوان مقاله:
دانش ، نظر و نگرش در مورد قانون ایتالیایی در مورد دستورالعمل های پیشرفته: یک نظرسنجی مبتنی بر جمعیت
Sciencedirect - Elsevier - Journal of Pain and Symptom Management, Journal Pre-proof: doi:10:1016/j:jpainsymman:2020:06:020
Ludovica De Panfilis, Paolo Giorgi Rossi, Elisa Mazzini, Luca Pistolesi, Luca Ghirotto, Antonio Noto, Sandra Cuocolo, Massimo Costantini
Introduction: Advance directives are legal documents which individuals draw up to declare their treatment
preferences and to appoint well-informed proxies to safeguard patient autonomy in critical situations when
that individual is temporarily or no longer able to communicate these preferences. On December 22, 2017,
the Italian Parliament approved the first law on end of life (“Provisions for informed consent and advance
directives” L.219/2017), after a heated public and political debate lasting almost twenty years. Objective:
The aim of this study was to investigate the awareness, knowledge, opinions and attitudes regarding Italian
Law 219/2017 and advance directives among the Italian population 15 months after its entry into force.
Methods A nationwide population-based survey was conducted by a certified public opinion survey
company. A sample size of 2000 interviews was planned. A structured questionnaire was developed to
investigate awareness, opinions and attitudes concerning the law by a multiprofessional research team.
The agreed-on version was pretested on a sample of 70 selected participants. Results: The sample included
2000 valid interviews; 70.1% of respondents declared they had heard about the law on informed consent
and advance directives. Respondents were asked to express their overall opinion on the law’s utility and
importance: 88% declared that the law was quite or very important and 76% had a positive attitude
towards making/registering advance directives. Conclusion: The principles of Italian Law 219/2017 are
aligned with the ethical sentiment of the vast majority of the Italian population. It is crucial to stimulate
discussion to increase knowledge and awareness in order to increase the number of advance directives.
Key words: Advance Directives | Informed Consent | Ethics | Survey