عنوان انگلیسی مقاله:
A:L:L: Y:O:U: N:E:E:D: I:S: L:O:V:E: Manual on health self-management and patient-reported outcomes among low-income young adult Mexicans on chronic dialysis: Feasibility study
ترجمه فارسی عنوان مقاله:
همه:شما:نیاز داشتن:است:عشق:دستیابی به سلامت خود مدیریت و نتایج گزارش شده بیمار در میان افراد کم درآمد جوانان مکزیکی های مزمن در دیالیز مزمن: مطالعه امکان سنجی
ScienceDirect- Elsevier- Journal of Pediatric Nursing, Corrected proof: doi:10:1016/j:pedn:2021:10:020
Juliette Marie Brito-Suárez MSc
Purpose: We evaluated disease knowledge/self-management skills among low-income Mexican young adults
maintained on dialysis and to test the effectiveness of the A.L.L. Y.O.U. N.E.E.D. I.S. L.O.V.E (AYNIL) Manual – Spanish Version on patient-reported outcomes. This is a low literacy teaching tool designed with patients and educators input.
Design and methods: A quasi-experimental study was conducted in 17 chronic dialysis patients at Mexico Citys
Hospital General de México, Dr. Eduardo Liceaga. Ages 18–30-year-old completed disease knowledge/selfmanagement and quality of life measures before the intervention and 6 weeks later.
Results: Significant increases were observed on disease knowledge/self-management scores in the STARx questionnaire from 47 (IQ: 40,51) to 50 (IQ: 48,54) p = 0.04. The UNC-TRxANSITION Index increased significantly from 4.8 (IQ: 3.9,5.7) to 7.7 (IQ: 7.5,8.2) p ≤0.001. Significant increases in scores were detected in the “Burden of kidney disease” (p = 0.008), “Effects of kidney disease” “ (p = 0.03) and “ Dialysis staff encouragement” (p = 0.027) based on the KDQoL survey.
Conclusions: In this vulnerable population, the Spanish version of the A.L.L. Y.O.U. N.E.E.D. I.S. L.O.V.E. - AYNIL Manual improved CKD/ESRD disease knowledge/self-management skills and HRQoL. This study highlighted the need for low-literacy educational tools to improve patient-reported outcomes. Practice implications: Young adults with CKD/ESRD can benefit from patient-centered educational interventions to enhance their autonomy and the development of self-management behaviors that improve patientreported outcomes and potential complications of the disease. Special attention is needed in low-income patients with low rates of adherence to treatments and poor self-management skills.
keywords: اقدامات گزارش شده بیمار گزارش شده است | خود مدیریت | ابزارهای کم سواد آموزی | آموزش بیمار | کیفیت زندگی | خود مراقبتی | Patient-reported outcome measures | Self-management | Low-literacy tools | Patient education | Quality of life | Self-care