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1 |
Medical research, Big Data and the need for privacy by design
تحقیقات پزشکی، داده های بزرگ و نیاز به حریم خصوصی توسط طراحی-2019 Medical research data is sensitive personal data that needs to be protected from unauthorized access and unintentional
disclosure. In a research setting, sharing of (big) data within the scientific community is necessary in order to make
progress and maximize scientific benefits derived from valuable and costly data. At the same time, convincingly protecting
the privacy of people (patients) participating in medical research is a prerequisite for maintaining trust and willingness to
share. In this commentary, we will address this issue and the pitfalls involved in the context of the PEP project1 that
provides the infrastructure for the Personalized Parkinson’s Project,2 a large cohort study on Parkinson’s disease from
Radboud University Medical Center (Radboudumc), in cooperation with Verily life Sciences, an Alphabet subsidiary.
Keywords:Big Data | GDPR compliance | informed consent | medical cohort study | polymorphic encryption | privacy by design |
مقاله انگلیسی |
2 |
A comparison of data protection legislation and policies across the EU
مقایسه مقررات و سیاست های حفاظت از اطلاعات در سراسر اتحادیه اروپا-2018 Although the protection of personal data is harmonized within the EU by Directive 95/46/
EC and will be further harmonized by the General Data Protection Regulation (GDPR) in
2018, there are significant differences in the ways in which EU member states imple
mented the protection of privacy and personal data in national laws, policies, and practices.
This paper presents the main findings of a research project that compares the protection
of privacy and personal data in eight EU member states: France, Germany, the UK, Ireland,
Romania, Italy, Sweden, and the Netherlands. The comparison focuses on five major
themes: awareness and trust, government policies for personal data protection, the appli
cable laws and regulations, implementation of those laws and regulations, and supervision
and enforcement.
The comparison of privacy and data protection regimes across the EU shows some
remarkable findings, revealing which countries are frontrunners and which countries are
lagging behind on specific aspects. For instance, the roles of and interplay between gov
ernments, civil rights organizations, and data protections authorities vary from country to
country. Furthermore, with regard to privacy and data protection there are differences in
the intensity and scope of political debates, information campaigns, media attention, and
public debate. New concepts like privacy impact assessments, privacy by design, data
breach notifications and big data are on the agenda in some but not in all countries.
Significant differences exist in (the levels of) enforcement by the different data protection
authorities, due to different legal competencies, available budgets and personnel, policies,
and cultural factors.
Keywords: Privacy ، Data protection ، Comparative law ، Personal data ، Data protection authorities |
مقاله انگلیسی |
3 |
The necessity of the implementation of Privacy by Design in sectors where data protection concerns arise
ضرورت پیاده سازی حریم خصوصی توسط طراحی در بخش هایی که در آن نگرانی محافظت از اطلاعات به وجود می آید-2017 This article examines the extent to which Privacy by Design can safeguard privacy and per
sonal data within a rapidly evolving society.This paper will first briefly explain the theoretical
concept and the general principles of Privacy by Design, as laid down in the General Data
Protection Regulation. Then, by indicating specific examples of the implementation of the
Privacy by Design approach, it will be demonstrated why the implementation of Privacy by
Design is a necessity in a number of sectors where specific data protection concerns arise
(biometrics, e-health and video-surveillance) and how it can be implemented.
Keywords: Privacy by Design | Privacy | Practical implementation of Privacy | by Design | Biometrics | e-health | Video-surveillance |
مقاله انگلیسی |